There are two types of people you can donate to. Many instances have a way to donate to them to upkeep and upgrade costs. Then you can donate also for development of the project here https://join-lemmy.org/donate

I had it but really had to scroll to the bottom. It was also not Reddit but articles saying it was the first result. Which is kind of ironic.

The good thing for him is that he was so young when he was diagnosed that he probably doesn’t know anything else. Saying this from personal experience as I was diagnosed at 14 months in mid 80s. Of course, something like this would be amazing as I can’t tolerate even small amounts of accidental gluten but as I don’t know anything else I can’t even imagine anything else.

I also have really complicated relationship with hope. Mainly, I try not to hope as my body seems to be insanely problematic. I am disabled with multiple autoimmune diseases and genetic syndrome. While objectively I find the advancement in treatment interesting and amazing, I personally try not to hope. It is absolutely exhausting to get your hopes up only for the other shoe to drop.

I think having a digital ID system is very important in the modern age but where it is required needs to be limited. You should not need to use it where it isn’t strictly necessary. We have one in Finland too. You will almost entirely use it to use official services that would need your ID in person as well. In this proposal, the issue is not digital ID but how it would be used. First, where it would be used could compromise revealing too much of your identity when you want privacy and secondly and more importantly, it could compromise revealing your private actions to the government. Latter can move into highly problematic territory when criminalizing actions that should not be criminalized.

They have a HIPAA-compliant version although not sure how secure it really is. In general, companies seem to care more about companies’ privacy than individuals.

Thank you! This really does point me in the right direction.

And as an aside, I absolutely love how welcoming the open source community is.

Hmm. I have been moving towards more and more open source. But my ability to code is very limited. Is there any kind of guide on how to get involved when you can’t code?

Coming from the non-profit world, it is never that easy. Even when there is no one officially making any money, there are people who will see it as a way to make some bank. There is also a drawback in that not making money can and will affect the amount of time people can put in unless there is a fair way to get them compensation. Volunteering also brings a huge amount of interpersonal and inter-organizational drama. That is why grassroots organizations and movements have a habit of fracturing into smaller groups.

At the same time, there is power in goodwill and being non-profit. You just really need to be careful in vetting your instance and keep an eye on issues in a way people not used to this type of world are not familiar with.

But I wouldn’t be here if I didn’t have a belief that it could be successful enough as a community. I also wouldn’t have been working in the NGO world for the past decade if I didn’t believe in that. But let’s not have too rosy glasses on. Growing slowly will also give this community a chance to work out the kinks and not die in a blaze of fire.

I found the attitudes behind the API changes and handling the whole thing problematic enough that I am here now. Deleted thousands of comments and posts on my way out.